I was diagnosed with Hashimoto's when I was 19. I had half of my thyroid gland removed because I had a large tumor (benign thank goodness) and have been on medication because of it for over 12 years. This autoimmune disease as some of you know causes fatigue, body aches, weight gain, cold sweats, hair loss, etc, etc. Now, not only do I have those, but even more symptoms from my seizures and extreme side effects from just about every medication for epilepsy that I have tried. The last one being blisters all over my neck, shoulders, and chest, but I'll talk about that a little later.
My first Clonic-Tonic happened when I was 26. I was the Beauty Stylist at Nordstrom, and it occured where I work! Talk about embarrassing. But, where did this seizure come from? Stress? My home life wasn’t that great at the time, so I tried to pour all of my energy into work. I was REALLY good at my job, one of the only things I'm confident about. Yet, I was financially supporting my boyfriend of over 6 years. Let's add more stress! It turns out, while I was working my ass off (while having these seizures!) he was at home doing my prescription drugs for anxiety on top of his own. Not cool. I finally, FINALLY kicked him out! It's hard to feel like you are good enough when you're permanently sick, and it took a lot of support and therapy to make this happen.
I’m writing my story now because I am tired of feeling like my life is out of control. Because it is! I am on my 4th disability leave. My second leave in one year. I have tried eight different medications since I was diagnosed and I'm starting to think I’m intolerant to seizure medication.
Bye for now!